🗣️💜 National NonSpeaking / Nonverbal Awareness Day – 30th September 💜🗣️ Today we stand alongside the nonverbal and nonspeaking community, raising awareness of the experiences and challenges faced by those who communicate in different ways. For many people with Kleefstra Syndrome, being nonverbal or having limited speech is part of their journey. But being nonverbal does not mean having nothing to say. With the right support — from communication aids to sign language, visuals, and patient listening — every voice can be heard. This day is about: ✨ Promoting understanding and inclusion ✨ Advocating for accessible communication methods ✨ Showing empathy and support to individuals and families Together, we can build a world where all voices are valued, no matter how they are expressed. 💜 #NonSpeakingAwarenessDay #InclusionMatters #KleefstraSyndrome #Raredisease #NonverbalAwarenessDay (fb)

💜 A HUGE thank you to James Stewart 💜 James is a close family friend of Trustee Courtney and Dan Helliwell. When he heard they were raising funds for Kleefstra Syndrome UK, he wanted to do something meaningful to help. James knew his workplace offered charity grants that employees could apply for, so he put forward an application on our behalf. In his submission, James shared Florence’s story, her Kleefstra Syndrome diagnosis, and why our small but mighty charity matters so much. He explained how funds raised help us run conferences and meet-ups that bring families together, share knowledge, and provide vital support. Thanks to James’ effort and kindness, we are thrilled to share that he secured a £1,000 grant for Kleefstra Syndrome UK! Acts of generosity like this make such a difference to our community. Thank you, James, for going out of your way to support Florence, her family, and every family affected by Kleefstra Syndrome. 💜✨ #ThankYou #KleefstraSyndromeUK #KleefstraStrong #Charity (fb)