AlphaNet Canada – Improving the lives of Alphas
822647871
T3H3C8
alpha1canada.ca
alphanetcanadainc
Podobné organizace
Care4ASH1L |
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GBS/CIDP Foundation of Canada |
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CANADIAN ORGANIZATION FOR RARE DISORDERS (CORD) |
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FOUNDATION FOR PRADER-WILLI RESEARCH CANADA |
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PSC PARTNERS SEEKING A CURE CANADA |
Podobné organizace global
Alphanet Inc |
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Alpha-1 Foundation, Inc. |
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Alpha 1 Association |
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ALPHA-1 UK SUPPORT GROUP |
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Alpha-1 Association Of Australia |
Podobně sociální sítě (1222)
spolek Lomničtí dospěláci1235 |
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GYPRI, o.p.s.1232 |
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Nadace O21234 |
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Diecézní charita Litoměřice1260 |
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Společnost pro Moravu a Slezsko, z.s.1258 |
Více Léčba duševního zdraví
AIM AT SUPPORT, z.ú.Česká Lípa |
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Spolek KOLUMBUSÚstí nad Labem |
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Masopust, z.s.Chomutov |
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Studio Radost, z.s.Rakovník |
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Helias Ústí nad Labem, o.p.s.Ústí nad Labem |
Novinky
The Alpha-1 Community Needs Your Help! Canadian Blood Services has launched a bold new recruitment campaign. "To get where we need to be, we’ve set an ambitious recruitment goal of one million new donors. Achieving that goal will take collective action — but at a time of growing national pride, Canada’s Lifeline stands as a powerful reminder of what’s possible when Canadians support one another." Plasma donations are vital for life-saving Alpha-1 therapies. Many patients rely on organ and blood donations for a second chance at life. Be the reason someone breathes easier — speak to your circle about becoming a donor. Visit https://at.blood.ca/whossavingwho/ to learn more. (fb)
This past weekend, AlphaNet Canada was honoured to present the Canadian alpha-1 access journey at the Alpha-1 Foundation Global Research Conference and Patient Congress in Lisbon, Portugal. We were incredibly proud to be joined by Dr. Sylvain Grenier, who shared valuable insights on the Canadian Blood Services' PPRP process and formulary. A heartfelt thank you to the Canadian alphas who bravely shared their stories of starting Glassia in the past year. Your voices resonated deeply and inspired our global community. And to everyone who sent in photos - thank you! They brought warmth, connection, and hope to fellow alphas worldwide. Your story matters. If you’d like to share your alpha-1 journey, connect with others, and stay informed, we invite you to subscribe to our AlphaNet Canada community. Message us directly at infoca@alphanetcanada.ca - we’d love to hear from you! (fb)
Poslední komentáře
So proud to support AlphaNet Canada! Together, we can make a difference for those impacted by Alpha-1. 💙 #Alpha1Awareness #CommunitySupportdetail |
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Thank you, AlphaNet Canada, for your dedication to improving the lives of individuals with Alpha-1! Your work is truly inspiring. 🙌 #HopeForAlphas #HealthMattersdetail |
Poslední diskuze
- What strategies can AlphaNet Canada implement to raise awareness about the importance of genetic testing for alpha-1 antitrypsin deficiency among at-risk populations?Odpovědí: 3, Naposledy před 1 den detail |
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- How can community partnerships enhance the support and resources available for individuals living with alpha-1 antitrypsin deficiency?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
T3H3C8
O společnosti
- F30 -
AlphaNet Canada Improving the lives of Alphas Alpha1 Antitrypsin Deficiency Alpha1 is a genetic inherited condition it is passed from parents to their children through their genes. Alpha1 may result in serious lung disease in adults andor liver disease at any age. 3 Up to 3 of all people diagnosed with COPD may have undetected Alpha1. Dr.
Léčba duševního zdraví