National Gaucher Foundation of Canada |
891299745
K1G5S3
gauchercanada.ca
ngfcanada
NGFCanada
Podobné organizace
COMMUNITY HEALTH SERVICES ASSOCIATION (REGINA) LIMITED |
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TRANSCARE COMMUNITY SUPPORT SERVICES |
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GBS/CIDP Foundation of Canada |
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CANADIAN CANCER SURVIVOR NETWORK |
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HISTIOCYTOSIS ASSOCIATION OF CANADA |
Podobné organizace global
Nergg Inc |
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National Gaucher Care Foundation Inc |
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THE AMERICAN SOCIETY OF GENE & CELL |
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GAUCHER COMMUNITY ALLIANCE |
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THE GAUCHERS ASSOCIATION LIMITED |
Podobně sociální sítě (423)
Benediktinské opatství Panny Marie a sv. Jeronýma v Emauzích424 |
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rodinné centrum CHUCHLE, z. s.424 |
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Emauzský spolek Gregorius424 |
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SK Meťák z.s.424 |
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Dagmar fest z.s.425 |
Více Nadace komunitní
Rudy Koně, z. s.Kojetín |
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Spolurádi z.s.Benešov |
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Nadace města Letovice pro rozvoj kultury a životního prostředíLetovice |
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Fórum dárců z.s.Praha |
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Abakus - nadační fond zakladatelů Avastu |
Novinky
International Rare Disease Day 💜🌎 Today, we stand with the 300 million people worldwide living with a rare disease. In Canada, rare doesn’t mean alone - it means a community of advocates, researchers, and families pushing for better treatments, faster diagnoses, and stronger support. For those living with Gaucher disease, we know firsthand the challenges of navigating a rare condition in a system that often wasn’t built with us in mind. But we also know the power of resilience, connection, and advocacy. Every conversation, every piece of research, every moment of awareness brings us closer to a future where rare diseases are met with the urgency and care they deserve. To our fellow rare disease warriors, caregivers, and allies: your voice matters. Keep asking the hard questions, pushing for change, and supporting one another. Because together, we are not rare. 💜 #RareDiseaseDay #GaucherDisease #RareButNotAlone #strongertogether❤️ (fb)
There’s still time to register for this inforrmative session (fb)
Poslední komentáře
Thank you, Dr. Amato, for your incredible dedication to the Gaucher community! Your impact will be felt for years to come. Wishing you all the best in your retirement! 💙 #GaucherAwarenessdetail |
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Excited to learn more about Lentiviral Vector Gene Therapy in the upcoming webinar! It's great to see innovation and hope for Gaucher patients. Let's keep raising awareness together this October! 🌟 #RareDisease #Hopedetail |
Poslední diskuze
- What strategies can we implement to increase awareness and support for Gaucher Disease during October's Awareness Month?Odpovědí: 3, Naposledy před 1 den detail |
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- How can we encourage more patients to share their experiences and stories to foster a stronger sense of community within the Canadian Gaucher network?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
K1G5S3
O společnosti
- T31 -
Lentiviral Vector Gene Therapy Webinar Learn about what it is how this type ofgene therapy works and hear the patient experience from the first Gaucher patient in the world to participate. Thank you Dr. Amato. After many many years of outstanding leadership and patient care in the Canadian Gaucher community we are sad to announce that Dr.
Nadace komunitní