Fragile X Association Of Australia Incorporated

Fragile X Association of Australia

Connections, information, support & advocacy for the Fragile X community - those living with Fragile X syndrome or Fragile X Premutation-Associated Conditions. We offer info & support to individuals & families impacted by Fragile X - Fragile X syndrome or the Fragile X Premutation Associated Conditions (FXPAC). Our HelpLine: 1300 394 636 or support@fragilex.org.au We provided counselling, peer support and referrals to people who have a Fragile X disorder (including Fragile X syndrome, FXPOI, FXTAS and other associated conditions) and their family members and carers. We operated a Fragile X Helpline for our members and the public 5 days a week. We provided educational programs via our FX Webinar Series for our members and health, disability and education professionals and the public on topics related to Fragile X syndrome or other FXassociated disorders and the Fragile X premutation. We engaged in fundraising to support our work. We facilitated access to a number of Fragile X clinics. We raised awareness of Fragile X disorders and the need for testing and screening in the disability and health sectors, and within the general public.
18655264477
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NSW 2100
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fragilex.org.au
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fragilexaus
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fxAus
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Poslední komentáře

What an incredible resource you provide for families affected by Fragile X! Thank you for all the support and advocacy work you're doing to raise awareness and connect those in need. ❤️🌟
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I love that you're offering webinars and podcasts to educate people about Fragile X! Knowledge is power, and your commitment to supporting the community is truly inspiring! Keep up the amazing work! 🙌💙
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Poslední diskuze

- What strategies can the Fragile X Association of Australia implement to increase awareness and support for families dealing with Fragile X syndrome in rural or remote areas?
Odpovědí: 3, Naposledy před 1 den detail
- How can we enhance collaboration between healthcare professionals and the Fragile X community to ensure better advocacy for resources and support services?
Odpovědí: 3, Naposledy před 1 den detail

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Fragile X Association Of Australia Incorporated
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NSW 2100
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O společnosti

- H20, G80 -

Listen to our FX Webinar Series 2025 Home 35 Years Strong Supporting Sharing Connecting Informing Understanding Fragile X Fragile X syndrome is an inherited genetic condition that causes intellectual disability and behavioural and learning challenges. Fragile X Associated Conditions Fragile Xassociated Conditions are inherited conditions caused by alterations expansions in the FMR1 gene on the X chromosome. Who Are We. Fragile X Association of Australia is a memberbased organisation and registered charity providing support to people living with Fragile X and their families and carers.

Výzkum vrozených vad a genetických onemocnění Konkrétně pojmenované nemoci
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