Fragile X Association of Australia
18655264477
NSW 2100
fragilex.org.au
fragilexaus
fxAus
Podobné organizace
Emerge Australia Incorporated |
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Xavier Children's Support Network |
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Explorability Inc |
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Fragile X Alliance Inc. |
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Genetic Alliance Australia Ltd |
Podobné organizace global
Fragile X Resource Center of Missouri |
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Fragile X Association of Southern California |
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FRAGILE X ASSOCIATION OF WASHINGTON STATE |
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THE NATIONAL FRAGILE X FOUNDATION |
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THE FRAGILE X SOCIETY |
Podobně sociální sítě (4898)
Asociace studentů fyzioterapie z.s.4900 |
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Nadace RSJ4900 |
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Klub Art 4 People z.s.4900 |
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Nadační fond Mathilda4900 |
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Svaz zakládání a údržby zeleně, z.s.4900 |
Více Výzkum vrozených vad a genetických onemocnění
Novinky
LIVE ONLY - two webinars this month on planning for the future for a family member with a disability, presented by Marg Duncan. First up DISABILITY ESTATE PLANNING. Examining 10 disability specific issues to consider when formulating Wills and Powers of Attorney that are to provide for a person with a disability. Covering: types of protective trusts, who to appoint as trustees, asset protection strategies, preservation of pensions/government benefits, superannuation & life insurance beneficiary nominations, and some accommodation options for a family member with a disability. Followed by: SPECIAL DISABILITY TRUSTS, Thursday 29 May 2025, 7pm AEST. https://www.fragilex.org.au/fx-webinars/webinar-program/ (fb)
Fabulous morning with speech pathology students, talking about effective communication supports for children and adults living with Fragile X syndrome. Liz's presented on the communication strengths and challenges associated with FX, with examples of social stories, AAC and other supports. Liz and our member Dave then chatted with students in tutorials. Many thanks to the families who provided wonderful examples of communication supports, videos and photos for Liz's presentation. Huge shoutout to Dave for spending the morning at Sydney University with Liz and Wendy, and to the students for their interest in Fragile X. (fb)
Poslední komentáře
What an incredible resource you provide for families affected by Fragile X! Thank you for all the support and advocacy work you're doing to raise awareness and connect those in need. ❤️🌟detail |
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I love that you're offering webinars and podcasts to educate people about Fragile X! Knowledge is power, and your commitment to supporting the community is truly inspiring! Keep up the amazing work! 🙌💙detail |
Poslední diskuze
- What strategies can the Fragile X Association of Australia implement to increase awareness and support for families dealing with Fragile X syndrome in rural or remote areas?Odpovědí: 3, Naposledy před 1 den detail |
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- How can we enhance collaboration between healthcare professionals and the Fragile X community to ensure better advocacy for resources and support services?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
NSW 2100
O společnosti
- H20, G80 -
Listen to our FX Webinar Series 2025 Home 35 Years Strong Supporting Sharing Connecting Informing Understanding Fragile X Fragile X syndrome is an inherited genetic condition that causes intellectual disability and behavioural and learning challenges. Fragile X Associated Conditions Fragile Xassociated Conditions are inherited conditions caused by alterations expansions in the FMR1 gene on the X chromosome. Who Are We. Fragile X Association of Australia is a memberbased organisation and registered charity providing support to people living with Fragile X and their families and carers.
Výzkum vrozených vad a genetických onemocnění Konkrétně pojmenované nemoci