Fight Bone Marrow Failure Syndromes | Maddie Riewoldt’s Vision
20613016765
VIC 3000
mrv.org.au
maddiesvision
MaddieRiewoldtsVision
M RIEWOLDT HOLDINGS LIMITED
M RIEWOLDT HOLDINGS LIMITED, operating under the public identity Maddie Riewoldt's Vision, is an Australian nonprofit organization dedicated to funding research and providing support for patients affected by Bone Marrow Failure Syndromes (BMFS). The charity is registered and regulated under Australian law, with up-to-date compliance and reporting obligations fulfilled as per the Australian Charities and Not-for-profits Commission (ACNC)[1][2].
Mission and Purpose
The organization focuses on advancing cures and treatments for Bone Marrow Failure Syndromes, rare and life-threatening conditions where the bone marrow does not produce an adequate number of blood cells. Its charitable purposes extend to supporting health services and research within this field[5]. Through funding research and increasing community awareness, the charity works toward improving outcomes and quality of life for adults and children affected by BMFS[2].
Activities and Impact
Maddie Riewoldt's Vision supports families confronting inherited Bone Marrow Failure Syndromes such as Fanconi Anaemia and Shwachman-Diamond Syndrome. It highlights personal stories of patients and their families to raise awareness and foster community engagement. The organization emphasizes the significance of bone marrow transplants as potential cures, while also addressing the risks and complications associated with these procedures[4].
By facilitating research funding and patient support initiatives, the charity aims to help secure better treatment access and ultimately find cures for BMFS. Donor contributions are tax-deductible and directed towards sustaining ongoing research and care programs[3][4].
Governance and Registration
M RIEWOLDT HOLDINGS LIMITED is registered with an Australian Business Number (ABN) 20613016765RR0001. The charity holds a current license (CCP3683) valid until at least 2099 under Section 6 of the ACNC regulatory framework, affirming its commitment to health-related charitable purposes. The organization completes annual statements reflecting income, expenditure, and funds devoted to its mission[1][5].
This nonprofit's work continues the legacy and vision of Maddie Riewoldt by channeling community support to find answers and cures for individuals impacted by these severe hematological diseases.
[1] https://www.acnc.gov.au/charity/charities/f5742f11-cb01-e911-a96e-000d3ad064bd/documents/d8a13607-2444-ea11-a813-000d3ad1f497 [2] https://www.acnc.gov.au/charity/charities/f5742f11-cb01-e911-a96e-000d3ad064bd/profile [3] https://www.mrv.org.au [4] https://www.mrv.org.au/get-involved/donate/ [5] https://charities.sa.gov.au/charities_details.php?licenceNo=CCP3683¤t=Yes
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Novinky
We are honoured to welcome Rachel to the team! Her expertise and dedication will play a key role in ensuring patients and families receive compassion, guidance and support when they need it most. To find out more or to make an appointment please visit: https://t.co/BX3bYdbJoz 💜 https://t.co/Dex59SnCXg (tw)
We’re thrilled to welcome former @TheMatildas Captain and @MelbourneCity goalkeeper Melissa Barbieri as our newest ambassador! 💜⚽ 🚴♀️We’re honoured to have her on board. Register for #AroundtheBay with code MRV10 for 10% off and start fundraising: https://t.co/RfA1hkk2tL. https://t.co/z16c6TU2b6 (tw)
Poslední komentáře
So inspired by the incredible work Maddie's Vision is doing for patients and families affected by Bone Marrow Failure Syndromes! Together, we can create a brighter future! 🌟 #FightLikeMaddiedetail |
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Kudos to Tim for taking on the Ultraman Challenge! Your dedication to raising awareness and support for such an important cause is truly uplifting! 💪❤️ #MaddiesVisiondetail |
Poslední diskuze
1. How can we better raise awareness about Bone Marrow Failure Syndromes and the importance of early diagnosis among healthcare professionals and the general public?Odpovědí: 3, Naposledy před 1 den detail |
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2. What innovative fundraising ideas could we implement to support ongoing research and provide enhanced support services for families affected by Bone Marrow Failure Syndromes?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
VIC 3000
O společnosti
- E70, F20 -
National Symposium 2325 May 2025 Victorian Comprehensive Cancer Centre Research Maddies Vision Bone Marrow Failure Syndromes Get Support Get Involved A brighter future for patients living with Bone Marrow Failure Syndromes Since Maddies Vision was founded in 2015 weve made an extraordinary impact into research and patient and family support. committed to research research projects funded patients supported by our TeleSupport Service and Peer Support Program of leveraged funding Maddie Riewoldt Maddie Riewoldt was just 26 years old when she died of complications from Aplastic Anaemia a Bone Marrow Failure Syndrome. Maddie wanted to ensure nobody else went through what she did. Maddie Riewoldts Vision is her legacy.
Programy veřejného zdraví Zneužívání alkoholu, drog a látek, závislost, prevence a léčba