Vcfs 22Q11 Foundation Inc

22q Foundation Australia and New Zealand, 22q11.2 Deletion Syndrome, VCFS, Di George

Velo Cardio Facial Syndrome or 22q11 Deletion affects 1:1000. Heart, Palate, Speech, Mental Health and much more can be affected. #22qAwareness #22q 22q Awareness Month and International Awareness Day in November Supported by Roche Diagnostics and Banquet Creative Social Media Campaign created by Banquet Creative Pink and Blue for 22q Campaign by Roche Diagnostics throughout the month of November and a celebration on November 22nd Parties and BBQs with the Pink and Blue Theme Multiple media publications Michelle Hinwood That s Life Magazine Charli and Maria Kamper Regional Lifestyle Magazine Georgia Fuller Adelaide Times Rachel Waters Take Five Magazine Charli and Maria Kamper Western Advocate Michelle Hinwood The Advocate Online News 22q lived experience video produced by Roche Diagnostics Australia with videos from members and professionals Awarded 2 x education grants to the value of $15,000 for the Care4Parents program. Care4Parents or CARE4Minds is an international joint venture by three dedicated, clinically and scientifically experienced health care professionals including Australia s Dr Linda Campbell. Care4Parents is training for parents with a child with medical complexity or a syndrome example 22q11.2DS. The courses were held online for families across Australia & NZ with 12 participant's maximum in each course. The courses were very popular and with a waitlist of 45 people. We hope to be able to obtain funding for future courses. First Program was funded by Roche Diagnostics October December 2021 Second Program was funded by Zynerba Pharmaceuticals May July 2022 Production of the 22q11.2DS TV Commercial/Advertisement. 11th annual 22q At the Zoo. 22q at the Zoo Worldwide Awareness Day. This year we those who attended we had 70% new families. With sponsorship from Banquet Creative we have a brand refresh In June/July we attended the International 22q Society Family Meeting in Croatia
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💙 So proud to support the efforts of the 22q Foundation in raising awareness and providing resources for families affected by 22q11.2 Deletion Syndrome! Together, we can make a difference! #22qAwareness #CommunitySupport
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🌟 Thank you to the 22q Foundation for creating such a welcoming space for families to connect and learn from each other. It's incredible to see how far we've come in raising awareness since 1994! Let's keep spreading the love! #22q #Inclusivity
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Poslední diskuze

What strategies can we implement to improve awareness and understanding of Velo Cardio Facial Syndrome in schools and among healthcare professionals?
Odpovědí: 3, Naposledy před 1 den detail
How can we foster stronger connections and support networks for families affected by 22q11.2 Deletion or Duplication Syndrome within our communities?
Odpovědí: 3, Naposledy před 1 den detail

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Supporting people with 22q11. 2 Deletion or 22q11. 2 Duplication Syndrome. Awareness Education Community Support Established 1994 Home Newly Diagnosed Education School News and Events ConnectContact Other 22q Conditions More The 22q Foundation Australia and New Zealand creates an inclusive space for families to connect learn and feel less isolated.

Vrozené vady, genetická onemocnění Nemoci, poruchy a lékařské disciplíny jinde neuvedené.
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