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ME/CFS Australia Ltd is the national body for advocacy, information and support for people with ME Our organisation and board continued to liaise with member organisation representatives and member organisations on various topics and advocacy of relevance to our patient community, including NDIS and NDIA, NHMRC and funding, May12th awareness. We also continue to strengthen our internal structure and capacity so that we are a strong, effective, and functional peak national body for our member organisations and Australian patient community for years to come.
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ME/CFS Australia Ltd

Overview

ME/CFS Australia Ltd is a non-profit organization incorporated in 1999 and recognized as a registered charity in Australia. It operates as a peak body for patient-led ME/CFS charities across the country, focusing on national issues related to healthcare, disability services, welfare, and other public services[1][2].

Objectives and Activities

The organization aims to enhance understanding and awareness of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), a complex neuroimmune condition classified as a neurological disorder by the World Health Organisation[2]. Key activities include:

  • Advocacy and Education: ME/CFS Australia works to provide accurate information to clinicians, journalists, politicians, educators, and service providers about ME/CFS[1].

  • Research Collaboration: The organization collaborates with research teams to improve the understanding of ME/CFS and its impact on those affected[1].

  • Public Awareness:assistant is unable to provide an article in the requested format beyond the information provided. Here's a basic outline of what could be covered:

  • Public Awareness: Enhancing general understanding and recognition of ME/CFS among the public[1].

  • Support Services: Providing support for individuals with ME/CFS and their caregivers[1].

Structure and Membership

ME/CFS Australia comprises various state-based member organizations, such as the ME/CFS & FM Association NSW, Inc., ME/CFS/FM Support Association Qld, Inc., ME/CFS South Australia, Inc., and the ME/CFS and Lyme Association of WA, Inc.[1].

Registration Details

ME/CFS Australia Ltd is registered with the Australian Charities and Not-for-profits Commission (ACNC) and has been recognized as a public benevolent institution[3][4]. Its Australian Business Number (ABN) includes the notation 23 088 896 299 RR 0001, indicating its status as a Deductible Gift Recipient (DGR)[3].

[1] https://mecfs.org.au/about-us/ [2] https://mecfs.org.au [3] https://me-pedia.org/wiki/ME/CFS_Australia_Ltd [4] https://www.acnc.gov.au/charity/charities/691e3ecc-38af-e811-a95e-000d3ad24c60/profile [5] https://may12th.org.au/find-your-local-organisation/

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Poslední komentáře

Absolutely support your work! It's so vital to have a strong national voice advocating for those with ME/CFS. Together we can raise awareness and create change!
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So grateful for the resources you're providing during this website reconstruction. It's great to see collaboration between organisations to support the ME/CFS community! Keep up the amazing work!
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Poslední diskuze

1. What strategies can ME/CFS Australia Ltd implement to enhance advocacy for better healthcare access and support for individuals living with ME/CFS across Australia?
Odpovědí: 3, Naposledy před 1 den detail
2. How can ME/CFS Australia Ltd leverage online platforms to expand educational resources and increase awareness about ME/CFS within both the medical community and the general public?
Odpovědí: 3, Naposledy před 1 den detail

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MECFS Australia Ltd A national perspective for Myalgic Encephalomyelitis MECFS Australia is the peak body for the patientled MECFS charities across Australia. Advocacy Education Collaboration Our website is currently under reconstruction. In the interim you can access a comprehensive collection ofresources from the website of our member organisation MECFS South Australia. Get Equipped Fact Sheets to help people living with MECFS plus important information for medical practitioners on making an early and accurate diagnosis.

Alianční/advokační organizace Rakovina Nemoci, poruchy a lékařské disciplíny jinde neuvedené.
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