MSBase Foundation Limited

The MSBase Foundation Limited is a nonprofit charitable organisation incorporated in Australia. It is dedicated to advancing collaborative epidemiological and outcomes research in multiple sclerosis and other neuro-immunological diseases.

Mission and Vision

The mission of the MSBase Foundation is to provide collaborative database tools and research support, enabling worldwide collaborative outcomes and epidemiologic research for the benefit of people with multiple sclerosis and other neuro-immunological diseases. The organisation's vision is to be the global leader in supporting collaborative, real-world, quality research in multiple sclerosis and other neuro-immunological diseases.

Activities

The MSBase Foundation operates and administers an international online neuroimmunology registry. It provides free data collection software tools, administrative support, and technical assistance to specialist clinics and hospitals. These resources facilitate longitudinal data collection, enabling closer disease monitoring and collaborative research on a global scale.

Key Initiatives

• MSBase Registry: This is a unique international collaboration focused on sharing, tracking, and evaluating outcomes data in multiple sclerosis and other neuro-immunological diseases.
• Free Software Tools: The foundation offers freely available data-entry and visualisation tools, such as MDS and iMed, to support research efforts.
• MGBase Registry: In addition to its focus on multiple sclerosis, the organisation is also developing a registry dedicated to myasthenia gravis.
• Research Support: MSBase encourages and facilitates investigator-initiated research projects and co-publishes collaborative peer-reviewed research articles in scientific journals.

Governance

The MSBase Foundation is governed by a Board of Directors, led by the Chair, and works closely with a Scientific Leadership Group to integrate and prioritise scientific initiatives.

Values

The organisation's activities are guided by a set of core values that drive its culture and decision-making processes, although specific values are not detailed in publicly available information.

International Impact

By providing a freely accessible resource for combining, comparing, and analysing large datasets, the MSBase Foundation plays a crucial role in advancing our understanding and treatment of multiple sclerosis and other neuro-immunological diseases worldwide.

[1] https://www.msbase.org/about-us/msbase-foundation/ [2] https://www.msbase.org [3] https://www.msbase.org/about-us/ [4] https://www.acnc.gov.au/charity/charities/4b2e8ddf-38af-e811-a963-000d3ad24077 [5] https://www.changepath.com.au/msbase-foundation-limited