Flicker of Hope Foundation Ltd

/ VIC 3207 /

Flicker of Hope - Shining a light on Neurofibromatosis

The Flicker of Hope Foundation raises funds for Neurofibromatosis medical research. The Flicker of Hope Foundation aims to raise much needed funds to support researchers in their quest to find positive treatments and improve the quality of life for those impacted by NF. The Flicker of Hope Foundation has made great progress in achieving its aims over the past four years. FoH has raised over $1,340,000 in this period to support the following research projects into NF: TiNT trial a trial of trametinib in children and adolescents with NF1 to treat plexiform neurofibromas and optic pathway gliomas. This research is being conducted by theMurdoch Children s Research Institute. ctDNA NF1 project a project to explore the feasibility of early detection of Malignant Peripheral Nerve Sheath Tumours (MPNSTs) using a blood test. Partnering in this project are The Royal Children s Hospital, The Royal Melbourne Hospital and Peter MacCallum Cancer Centre. Blood Pressure Monitoring Joint research project between The Royal Children s Hospital and Murdoch Children s Research Institute for blood pressure monitoring of children and adolescents with NF. A Flicker of Hope initiative, collaborating with The Florey Institute of Neuroscience and Mental Health to conduct world leading, ground breaking research into autism, cognitive and behavioural issues in people with NF1. Flicker of Hope continues to explore opportunities to work with researchers to find positive treatments and improve the quality of life for those impacted by NF.
49628151762
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VIC 3207
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flickerofhope.org.au
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flickerofhopefoundation
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Thank you for all the amazing work you do! Every bit of support brings us closer to finding a cure for Neurofibromatosis. 💙✨ #FlickerOfHope
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So proud to be a part of this community! Let's keep shining a light on NF and support the incredible research happening. Together, we can make a difference! 💪💖 #NeurofibromatosisAwareness
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Poslední diskuze

What innovative fundraising strategies have been most effective for non-profits focused on rare medical conditions like Neurofibromatosis?
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How can we improve public awareness and understanding of Neurofibromatosis to foster greater community support and engagement?
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Stay up to date on Facebook Follow us on instagram YouTube Channel Help us shine a light on Neurofibromatosis Neurofibromatosis is a genetic disorder that can cause tumours cancer epilepsy disfigurement blindness and learning difficulties including autism. One in 2500 people are affected. There is no cure. Stay up to date Thank you to all our generous supporters.

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