Haemophilia Foundation NSW Inc

Overview

The Haemophilia Foundation NSW Inc is a not-for-profit organisation dedicated to providing support programs and advocacy for individuals and families affected by bleeding disorders in New South Wales, Australia. The foundation plays a crucial role in the community by offering various resources and services tailored to the needs of those living with haemophilia and other bleeding conditions.

Activities

The Haemophilia Foundation NSW Inc engages in several key activities to support its mission:

• Support Programs: The foundation offers a range of support programs aimed at assisting individuals and families to manage bleeding disorders effectively. This includes educational resources and emotional support initiatives.
• Advocacy: The organisation works tirelessly to advocate for the rights and needs of people with bleeding disorders, ensuring that their voices are heard in policy-making and healthcare planning.
• Community Engagement: It facilitates the establishment and operation of local support groups throughout New South Wales, allowing individuals to connect with others who share similar experiences.

Governance and Leadership

The Haemophilia Foundation NSW Inc is part of a broader national network under the Haemophilia Foundation Australia (HFA). The HFA Council includes one delegate from each state and territory foundation, with Dan Credazzi representing New South Wales. Dan Credazzi is also the current Vice President of the HFA and serves as the President of the Haemophilia Foundation NSW Inc. His leadership reflects the foundation's commitment to being led by individuals who are personally connected to and understand the challenges of bleeding disorders.

Role in the Community

The organisation plays a vital role in raising awareness about bleeding disorders, including haemophilia and von Willebrand disease, particularly among women and girls who may be affected or be carriers of these conditions. By fostering a supportive environment and providing access to information and resources, the Haemophilia Foundation NSW Inc helps ensure that those affected receive the best possible care and support.

Legal Status

Haemophilia Foundation NSW Inc is registered as a nonprofit organisation in Australia, with an Australian Business Number (ABN) of 60 245 470 729. This status allows the organisation to operate as a charitable entity, focusing on fulfilling its mission without profit motive.

[1] https://www.hfnsw.org.au [2] https://www.acnc.gov.au/charity/charities/f210e970-38af-e811-a961-000d3ad24182 [3] https://www.acnc.gov.au/charity/charities/f210e970-38af-e811-a961-000d3ad24182/documents/27af1e59-5759-eb11-bb23-000d3ad1f29c [4] https://www.dnb.com/business-directory/company-profiles.haemophilia_foundation_nsw_inc.158cc6de29e29b5aaa5eab8f8123f837.html [5] https://www.haemophilia.org.au/about-us/our-council/