Alpha-1 Association Of Australia
AAA
63744700911
QLD 4001
alpha1.org.au
alpha1ANZ
Alpha1Australia
The Alpha-1 Association of Australia (AAA) is a nonprofit health promotion charity dedicated to supporting Australians affected by Alpha-1 Antitrypsin Deficiency (A1AD or AATD), a genetic condition impacting the liver and lungs. Established on 15 June 2005, the AAA serves as a central body providing information, advocacy, and community support for those living with or interested in Alpha-1 in Australia[5].
Mission and Objectives
The AAA’s vision is to see Australia free from Alpha-1 Antitrypsin Deficiency. Its mission focuses on raising awareness of the condition to stimulate funding for research aimed at prevention and improved treatment outcomes. This ultimately seeks to enhance the quality of life for individuals living with Alpha-1[5].
Key objectives of the AAA include:
- Acting as a catalyst for initiatives benefiting those affected by Alpha-1 in Australia.
- Promoting prevention and control of symptoms associated with A1AD.
- Raising awareness of Alpha-1 throughout Australia.
- Providing support networks for patients and their families.
- Serving as a centralized information resource on Alpha-1 related issues specific to Australia.
- Raising funds to facilitate the achievement of these objectives[5].
Activities and Services
The AAA offers various means of communication and community engagement for its members and individuals affected by Alpha-1. These include social media presence, such as on platforms like X (formerly Twitter), LinkedIn groups, and online discussion forums targeted at Australians and New Zealanders dealing with the condition. The organization prioritizes education, advocacy, and research promotion to advance breakthroughs and eventually find a cure for Alpha-1[2][1].
The association also encourages donations and corporate support to help fund its activities and objectives, emphasizing that even small contributions are valuable[2].
Registration and Status
The Alpha-1 Association of Australia is recognized as a registered charity in Australia, with an Australian Business Number (ABN) 63744700911RR0001. It operates as a non-profit organization committed to the general community in Australia and adheres to governance as monitored by relevant Australian charitable authorities[4][5].
This organization plays a crucial role in uniting and supporting Australians affected by Alpha-1 Antitrypsin Deficiency, facilitating awareness, education, and research aimed at combating this rare genetic disorder.
[1] https://www.a1oa.org.au [2] https://alpha1.org.au [3] https://rareportal.org.au/rare-disease/alpha-1-antitrypsin-deficiency-a1ad/ [4] https://www.acnc.gov.au/charity/charities/5e3980d5-39af-e811-a95e-000d3ad24c60/profile [5] https://www.myvmc.com/supportive/alpha-1-association-of-australia-aaa/
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Novinky
Dosing now underway. See: https://t.co/k1HSlp1bng #Alpha1ANZ antitrypsin (tw)
The AAA website has been refreshed. See: https://t.co/5dwCaeJ5qL To comment generally, to point out errors, make suggestions, please do so via: https://t.co/qHagYjADTv #Alpha1OZ antitrypsin (tw)
Poslední komentáře
🌟 Thank you, Alpha-1 Association of Australia, for the invaluable support you provide to those affected by Alpha1 Antitrypsin Deficiency. Your dedication makes such a difference in our community! 💚detail |
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👏 It's great to see initiatives like this promoting awareness and understanding around AATD. Together, we can spread the word and help those in need! Let's keep the conversation going! 🗣️✨detail |
Poslední diskuze
- What are some innovative fundraising strategies that NGOs like the Alpha-1 Association of Australia can implement to raise awareness and support for Alpha-1 Antitrypsin Deficiency?Odpovědí: 3, Naposledy před 1 den detail |
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- How can partnerships between public and private sectors be leveraged to accelerate research and development for treatments related to Alpha-1 Antitrypsin Deficiency?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
QLD 4001
O společnosti
- E70, E80 -
The AAA isan organisation dedicated to the help and support of Australians who are affected by and interested in Alpha1 Antitrypsin Deficiency Alpha1. There are several means of communicating with the AAA its members and others interested in Alpha1 You can also communicate with usin amore traditional way see theContact pagefor options. Please consider visiting the web sites of our valuedsponsors. Let them know that the AAA referred you which tells our sponsors that we appreciate their support.
Programy veřejného zdraví Zdraví (obecné a financování)
