DEBRA Australia | Working for a life free from pain

Non-profit organisation caring for families in Australia with Epidermolysis Bullosa (EB). Help us find a cure, donate at http://t.co/t6fOocsSnr. DEBRA is an Australian charity that supports individuals, families & carers affected by Epidermolysis Bullosa (EB), a rare genetic condition which causes the skin to blister at the slightest friction or even spontaneously. DEBRA Australia provided support to families living with Epidermolysis Bullosa (EB) on a national basis to enable them access to the best quality care, whilst supporting research to drive the effective development of treatments. In addition, we facilitated education and raised awareness and understanding amongst professionals and the broader community regarding this very rare painful genetic skin condition.
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❤️ Thank you, DEBRA Australia, for the incredible support you provide to families affected by EB! Together, we can raise awareness and bring hope to those living with this challenging condition. Let's keep pushing for a cure! #EBAwareness
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🌟 Just made a donation to DEBRA Australia! Every little bit helps in the fight against Epidermolysis Bullosa. Join me and support this amazing charity that cares for families in need. Together, we can make a difference! #EB #SupportDEBRA
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Poslední diskuze

1. What are some effective strategies to raise awareness about Epidermolysis Bullosa (EB) in local communities and schools?
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2. How can we encourage more people to participate in fundraising activities for DEBRA Australia, and what types of events have proven most successful?
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What is EB. Epidermolysis Bullosa EB is a rare disease whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful and sufferers must be bandaged every day with dressings to protect and medicate their wounds.

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