THE NEUROMUSCULAR DISEASE FOUNDATION
Neuromuscular Disease Foundation | GNE Myopathy | HIBM
61789643
2006
Beverly Hills, CA 90212 USA
curegnem.org
CureHIBM
NDF.HIBM
Podobné organizace
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National Brain Tumor Foundation |
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Podobné organizace global
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National Foundation for Medical Research and Innovation |
Podobně sociální sítě (6814)
Divadlo X10 z. s.6900 |
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ATK STANDARD CHEB a taneční škola Vladimíra Hány z.s.6900 |
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SK HAMR, z.s.6900 |
Novinky
Wishing our Patient Advocate Kyeong a very happy birthday and a hopeful, healthy year ahead! (fb)
Wishing our Patient Advocate Kyeong a very happy birthday and a hopeful, healthy year ahead! (fb)
Poslední komentáře
Incredible work, NDF! Thank you for making a difference in the lives of those affected by HIBM. Together, we can raise awareness and help find a cure! 💙🙏detail |
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I’m so proud to support the NDF’s mission! Every donation counts and can lead us closer to crucial research breakthroughs for GNE Myopathy. Let’s keep pushing for more awareness! 🌍💪detail |
Poslední diskuze
1. How can we improve awareness and understanding of Hereditary Inclusion Body Myopathy (HIBM) among healthcare professionals and the general public?Odpovědí: 3, Naposledy před 1 den detail |
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2. What role do you think gene therapy could play in future treatments for GNE Myopathy, and how can NDF support this research effectively?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
5
10
4.5
Beverly Hills
O společnosti
- NDF -
We work to enhance the quality of life for those living with GNE Myopathy by funding critical research focused on treatments and a cure throughThe International Gene Therapy Development Program IGTDPand by advocacy education and outreach. We work to enhance the quality of life for those living with GNE Myopathy by funding critical research focused on treatments and a cure throughThe International Gene Therapy Development Program IGTDPand by advocacy education and outreach. Our Virtual Learning Library provides recordings of our GNEM Speaker Series events podcasts and webinars and is an invaluable resource where you can find answers to many of your questions about GNE Myopathy and the work of NDF. For Patients For Scientists Executive Summary of NDFs Research Efforts Our impact at a glance 4873 People Served Annually 5000 Individual Supporters 9M Funded in service of GNEM Science Programs 50 Countries 43 Associated Scientific Advisors Our Global Impact Tara USA California Amy USA Pennsylvania Al USA Minnesota Saskia Germany Rushab India Melissa USA Georgia Mona Lea England Valenee England Vaneesha France Roberta Turkey Leif Switzerland Okama Ivory Coast Sabeen Pakistan Suleyman Turkey Osamu Japan Suleyman Turkey Maya Israel Abdullah Saudi Arabia Kelly Taiwan Stephen Australia Latest News Happy Holidays.
