Cardio Facio Cutaneous International
Cardio Facio Cutaneous syndrome International
161569293
Austin, TX 78738 USA
cfcsyndrome.org
cfcsyndrome
Podobné organizace
Center for Family Support Inc |
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COSTELLO SYNDROME FAMILY NETWORK |
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Cfhc We Care |
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Cfhc Support Organization |
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Cfs Self-Directed Supports Inc |
Podobné organizace global
HEARTLANDS CYSTIC FIBROSIS CENTRE |
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BURY AND BOLTON ME/CFS & FIBROMYALGIA SUPPORT GROUP |
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Action FCS |
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SUPPORTROCCO |
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CF WARRIORS |
Podobně sociální sítě (3000)
Více Konkrétně pojmenované nemoci
Asociace polioPraha |
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PODEJ NÁM RUKU, z. s.Klatovy |
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Nadační fond Pozitivní životPraha |
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Pacienti IBD z.s.Praha |
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Máša z.s.Praha |
Novinky
🌟 What an incredible day at the Kinley Klassic and Kami Too Golf Tournament on September 8th! 🏌️♂️⛳️ Together, you all raised an astounding $95,000 for CFC International! 🙌🎉 A heartfelt thank you to all participants, sponsors, and volunteers who made this event a remarkable success. Your unwavering support fuels our mission to provide vital support and research for all diagnosed with CFC syndrome!❤️ Stay tuned for photos of this amazing day filled with more 250 supporters in our Oklahoma City community! #kinleyklassicandkamitoo #cfcsyndrome #CFCAwareness #cfcinternational (fb)
We are getting ready over here for the BIG DAY! We are just 3 days away from the SOLD OUT Kinley Klassic and Kami Too! Golf Tournament on September 8th in Oklahoma City! The swag bags are filling up, silent auction items are being inventoried, and we hope our 280 golfers are practicing their swings (don't worry we offer mulligans). We cannot wait to share what this amazing event brings to our community for 2025! #cfcinternational #cfcsyndrome #kinleyklassicandkamitoo (fb)
Poslední komentáře
So inspired by the incredible work being done by CFC International! 🌟 It's amazing to see how your efforts truly impact the lives of individuals and families affected by CFC Syndrome. Thank you for your dedication and support! 💖detail |
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Just wanted to give a huge shoutout to everyone involved in the recent Family Medical Conference! 🙌 It's events like these that make such a difference in spreading awareness and building a strong community for families dealing with CFC Syndrome. Keep up the great work! 💚detail |
Poslední diskuze
What are some innovative strategies NGOs can implement to raise awareness and support for rare diseases like CFC syndrome?Odpovědí: 3, Naposledy před 1 den detail |
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How can the experiences and stories of families affected by CFC syndrome be better integrated into educational resources for healthcare professionals?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
3
20
4.5
Austin
O společnosti
- G80, G98, U12 -
support. research. awareness. Education.
Konkrétně pojmenované nemoci Pediatrická péče Sběr a/nebo distribuce finančních prostředků.
