Melissa Brunner, news director at WIBW-TV in Topeka, will host this year’s National Gala. Melissa’s connection to the Children’s Tumor Foundation is deeply personal—her nephew Owen, now 22, was diagnosed with NF1 at just six months old. She uses her platform and voice to raise awareness and amplify the NF community. From covering NF stories on local news, to hosting World NF Awareness Day Live in 2023, and leading both the 2023 and 2024 Shine A Light NF Walks in Kansas City, Melissa has made a lasting impact—bringing hope, visibility, and connection to families affected by NF. She also helped bring the Shine a Light campaign to Topeka, where the downtown plaza glows blue and green each year, inspiring families like Owen’s. Join us in supporting the NF community at this year’s Gala or tune in virtually. RSVP at ctf.org/gala #endNF #CTFGala WIBW Melissa Brunner WIBW WIBW, 13 News This Morning (fb)

Patient research is essential to moving science forward — and the Children’s Tumor Foundation is pleased to share this opportunity with the NF community. Are you or someone you care for living with neurofibromatosis type 1 with plexiform neurofibromas (NF1-PN)? This study seeks to better understand the treatment experiences of people living with NF1-PN. Your insights can help researchers learn more about the real-world needs of NF1 patients and families. What’s Involved: ‣ A quick, 10-minute online survey ‣ 100% anonymous participation ‣ Opportunity to inform future research Who Can Participate: ‣ Individuals living with NF1-PN ‣ Caregivers of someone with NF1-PN ‣ Those who have used (or are using) medication to manage NF1-PN symptoms Take part now: https://www.surveymonkey.com/r/TPDKM8S Questions? Email patientadvocacy@gondolabio.com (fb)