Cystinosis Research Network, Inc.
Cystinosis Research Network
43323789
1996
Lake Forest, IL 60045 USA
cystinosis.org
CystinosisCRN
CystinosisResearch
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Podobně sociální sítě (2901)
Více Alianční/advokační organizace
Novinky
Let's talk cystinosis gene therapy trial. You have questions, let's get answers. What would you like to know about cohort 0? Drop your inquiries in the comments or email info@cystinosis.org. https://clinicaltrials.gov/study/NCT06910813 #cystinosis #GeneTherapy #ClinicalTrial (fb)
#Cystinosis news: millions awarded to continue CF10 prodrug research Cystinosis Foundation UK #RareResearch (fb)
Poslední komentáře
💙 So thankful for all the hard work the Cystinosis Research Network does! Together, we can raise awareness and support those affected by cystinosis. Let’s keep pushing for better treatments and a cure! #CystinosisAwarenessdetail |
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🌟 Amazing to see the community come together for a vital cause! The educational resources and support from the Cystinosis Research Network make such a difference in the lives of families. Let's keep the momentum going! #CystinosisResearchdetail |
Poslední diskuze
- How can we better engage the medical community to improve awareness and treatment options for cystinosis?Odpovědí: 3, Naposledy před 1 den detail |
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- What new initiatives could the Cystinosis Research Network implement to enhance support for families affected by cystinosis?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
20
4.5
Lake Forest
O společnosti
- G01, H01, H80 -
Making Lives Better Starts Here The Cystinosis Research Networks vision is the acceleration of the discovery of a cure development of improved treatments and enhancement of quality of life for those with cystinosis. Support The Cystinosis Research Network offers a variety of educational materials and research articles along with opportunities to connect with others online and inperson. Research The Cystinosis Research Networks vision is the discovery of improved treatments and ultimately a cure for cystinosis. Education and Awareness The Cystinosis Research Network educates the public and professional community about cystinosis is actively involved in the rare disease community and offers educational scholarships to individuals with cystinosis and their siblings.
Alianční/advokační organizace Alianční a advokační organizace Výzkum specificky pojmenovaných nemocí
