Home - Phelan-McDermid Syndrome Foundation - The support you need today, the treatments and cures you're counting on tomorrow.
43673104
2002
Osprey, FL 34229-9610 USA
pmsf.org
Phelan_McDermid
PMSF22q13
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Novinky
Get ready to shop! 🛍️ The first-ever PMSF online store opens June 2, featuring a curated collection of branded gear designed to celebrate and connect our community. 🗓️ But heads up: The store will only be open from June 2–22! This limited window helps us keep prices affordable and meet minimum order quantities. 👕 Shirts, hats, water bottles, and more — all created with YOU in mind. Every purchase helps support PMSF’s mission to serve families and fund research. Stay tuned for all the details, including the link, and get ready to rep PMSF with pride! 💚 #PMSFStore #ShopForACause #ComingSoon #PMSF (fb)
🎉 We did it—THANK YOU! To everyone who moved, donated, fundraised, and supported Raising Hope Through Movement, we are so grateful. 💚 Together, our community raised $85,033.89, including $60,033.89 from peer-to-peer fundraising and $25,000 in sponsorships, to support programs that truly matter—like research through our grants program, caregiver support, and new family resources. Your impact goes far beyond these 13 days. You’ve helped move our mission forward, one stride at a time. #ThankYou #RaiseHope2025 #PMSF #StrongerTogether (fb)
Poslední komentáře
💜 So grateful for the incredible work being done by the Phelan McDermid Syndrome Foundation! Your support and resources are a lifeline for so many families facing this challenge. #Hope #Communitydetail |
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🌟 Thank you for spreading awareness about Phelan-McDermid syndrome! Together, we can make a difference and bring hope to families navigating this journey. 💪✨ #PMSF #UnitedForHopedetail |
Poslední diskuze
1. How can we further raise awareness and understanding of Phelan-McDermid syndrome within our communities to support affected families?Odpovědí: 3, Naposledy před 1 den detail |
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2. What are some innovative ways the Phelan-McDermid Syndrome Foundation can enhance its research funding efforts to accelerate the development of treatments?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
11
50
4.5
Osprey
O společnosti
- 941, G20, H84, E01 -
PhelanMcDermid Syndrome Foundation. PhelanMcDermid syndrome is a rare genetic disorder that can affect many critical functions in a persons body from learning and communicating to eating and sleeping. The PhelanMcDermid Syndrome Foundation is doing everything it takes to make today better and the future brighter for everyone living with this complex condition from the moment of diagnosis to the delivery of treatments and cures. Find Information Support About the Syndrome New Diagnosis Latest Research Resource Library News Updates Events Gatherings Connect Care Cure Join the Phamily Families supporting families is the driving force behind the PhelanMcDermid Syndrome Foundation.
Vrozené vady, genetická onemocnění Autismus Alianční/advokační organizace