FH Europe Foundation - A European Patient Network For FH
382568754
fhef.org
fhpatienteurope
FHEurope
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Podobně sociální sítě (2820)
Novinky
🧠World Stroke Day – Protect Your Brain, Manage Your Cholesterol High cholesterol isn't just a heart issue, it’s a leading cause of stroke. Elevated LDL cholesterol contributes to plaque buildup in arteries, increasing the risk of ischemic strokes, which account for over 80% of all strokes worldwide. Read more in: Ischemic stroke in the context of high low-density lipoprotein cholesterol: A 30-year global burden perspective of 204 nations - PubMed 🔗https://pubmed.ncbi.nlm.nih.gov/40780550/ High LDL-C can go unnoticed for years, especially in familial hypercholesterolaemia (FH) and other inherited conditions. As early detection and management save lives, policy change is needed so that everyone, including those with inherited risk, has access to screening and treatment. 📣 Join the movement If you or someone you love lives with an inherited lipid disorder, or if you want to prevent stroke before it happens, get involved in our community and support initiatives like the Prague Declaration, calling for universal FH screening and access to effective lipid management. 👉 Check and endorse: https://fhef.org/prague-declaration/ Together, we can know our numbers, manage our cholesterol, and advocate for policies that protect everyone from stroke. #WorldStrokeDay #CholesterolManagement #StrokePrevention #KnowYourNumbers #HealthPolicy #PreventStroke #PreventThePreventable (fb)
🧠 World Stroke Day – Know a hidden risk! Did you know that lipoprotein(a), or Lp(a) could raise your stroke risk. One recent big review found around a 1.7-times higher chance of stroke recurrence and about twice the odds of poorer functional recovery. What’s important for you to know: ℹ️ Lp(a) is mostly determined by your genes, so diet and exercise alone don’t always lower it. ℹ️Even if many clinical guidelines now recommend that every adult has at least one Lp(a) test in their lifetime, it’s still not always checked during standard cholesterol tests. ℹ️By asking your doctor to test your Lp(a), you can find out if you have this extra risk. Then you and your doctor can take stronger steps to protect you. Effective prevention isn’t just about individuals, it’s about systems. The Brussels International Declaration calls for: ✅ Making Lp(a) testing routine and universally accessible, not optional. ✅ Integrating Lp(a) into national and global cardiovascular and stroke-prevention plans. ✅ Recognising that everyone should have at least one lifetime Lp(a) screening so we catch hidden risks early. Read more: https://fhef.org/news/ground-breaking-international-study-on-lpa-testing-cost-effectiveness/ Let’s use this World Stroke Awareness Day not just to talk about stroke — but to prevent it, together. Sign the Declaration here: https://fhef.org/brussels-international-declaration/ #WorldStrokeDay #StrokePrevention #KnowYourLpA #OneTimeScreening #HealthPolicy #BrusselsDeclaration #PreventThePreventable (fb)
Poslední komentáře
❤️ So proud to support the Forest Hills Educational Foundation! Together, we can raise awareness and create a future where everyone affected by inherited lipid conditions receives the care they deserve. Let's make a difference! #FindFH #TogetherWeCandetail |
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🌳 Amazing work being done by the FHEF! It's vital that we prioritize early diagnosis and treatment for inherited dyslipidemias. Every effort counts in preventing heart attacks and improving lives. Keep it up! 💪 #FindHoFH #HealthForAlldetail |
Poslední diskuze
1. How can we enhance collaboration among patient organizations across Europe to improve awareness and diagnosis of inherited lipid conditions like FH and HoFH?Odpovědí: 3, Naposledy před 1 den detail |
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2. What innovative strategies can we implement to increase health literacy and access to treatment for individuals affected by inherited dyslipidemias in underserved communities?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
O společnosti
- B12 -
Improving Europewide awareness understanding and access to diagnosis and treatment of inherited lipid conditions About Us Our Mission Our Objectives Our Strategy Our mission is to improve Europewide awareness understanding and access to diagnosis and treatment of inherited lipid conditions specifically FH HoFH Lpa FCS so that all those impacted receive optimal treatment and support resulting in longer and healthier lives. Our vision is to achieve early recognition of lifethreatening dyslipidaemias for all impacted people in a future where So that together with our Network patient organizations and other stakeholders we will be able to prevent the consequences among them premature heart attacks and deaths of inherited dyslipidaemias. FH Europe Foundation FHEF has as its object the advancement of health the prevention of early atherosclerotic cardiovascular diseases ASCVD and other diseases as a consequence of inherited dyslipidaemias in particular through timely screening diagnosis and treatment as well as education health literacy promotion access to treatment and related health policy influencing. The FHEF foundation will specifically but not exclusively devote itself to the following activities To deliver on its mission FHEF identified the following strategic projects Governance Impact Report Financial Statement Policies Our impact reports are available to download FH Europe has been registered as a foundation Stichting FH Europe Foundation in the Netherlands KvK number 86407481 RSIN number 863956762 since May 17th 2022.
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