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222580173
1981
St. Charles, IL 60174 USA
nfmidwest.org
NFMidwest
Podobné organizace
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Novinky
Learn about plexiforms here: https://tinyurl.com/plexiformsNF1 Today is the last day of NF Awareness Month! What have you got up your sleeve to raise awareness or TAKE ACTION on this final day? We'd love to hear it. Don't forget, awareness is a year long effort. Just because the month is over, doesn't mean we stop fighting! #endNF (fb)
Read about MPNSTs here: https://tinyurl.com/MPNSTinNF1 Read about the increased cancer risk in NF1: https://tinyurl.com/NF1CancerRis Tomorrow is the last day of our official Awareness Month (though we NEVER STOP). We hope you are go out strong! #endNF (fb)
Poslední komentáře
🌟 Thank you, NF Midwest, for being a beacon of hope for families navigating the challenges of neurofibromatosis! Your support and resources make such a difference in our lives. We are grateful! 💙 #NFMidwest #TogetherWeThrivedetail |
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💬 It’s heartwarming to hear how NF Midwest has created a community of support and understanding! Knowing we're not alone in this journey is everything. Keep up the amazing work! 🌈 #Support #NFCommunitydetail |
Poslední diskuze
1. What strategies can we implement to increase awareness about Neurofibromatosis within local communities?Odpovědí: 3, Naposledy před 1 den detail |
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2. How can we improve support networks for families newly diagnosed with NF to help them navigate the emotional and informational challenges?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
6
50
4.5
St. Charles
O společnosti
- 630, G01, H80, W99 -
Neurofibromatosis Midwest Clinics Awareness Research Education Support Mom found NF Midwest she calls them our life ring and for good reason they saved us in more ways than they or anyone else could imagine. We were no longer alone. They sent us information talked to us gave us a breath when everyone else seemed to have taken it away. Trust me when I say my NF is much easier with them in my corner.
Alianční/advokační organizace Výzkum specificky pojmenovaných nemocí Veřejné, prospěšné pro společnost - Víceúčelové a ostatní, jinde neuvedené.