Cohen Syndrome Association
Cohen Syndrome | COH1 | Pepper Syndrome - International Parent Association for Children with Cohen Syndrome
263507520
Middlefield, OH 44062 United States
cohensyndrome.org
Cohen-Syndrome-Association-106234886074462
Podobné organizace
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Podobné organizace global
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Podobně sociální sítě (1000)
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Více Nemoci nervů, svalů a kostí.
Nadace Jakuba VoráčkaKamenné Žehrovice |
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Achilleus z. s.Libušín |
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Klub stomiků ILCO Kladno, z.s.Kladno |
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Pobočka Diakonie Církve bratrské v MostěMost |
Novinky
2026 camp dates will be announced soon! Stay tuned 😍 #CohenSyndrome #familyretreat #camp #Ohio #amishcountry (fb)
Poslední komentáře
So inspired by the dedication and passion of the Cohen Syndrome Association! Together, we can raise awareness and help families navigate this journey. 💙 #CohenSyndromeAwarenessdetail |
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It's amazing to see how far the Cohen Syndrome Association has come since 2008! Let's keep spreading knowledge and support for all families affected by Cohen Syndrome. 🙌 #WeARECohenSyndromedetail |
Poslední diskuze
- How can we improve early diagnosis and awareness of Cohen Syndrome in medical communities worldwide?Odpovědí: 3, Naposledy před 1 den detail |
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- What role do social media platforms play in connecting families affected by Cohen Syndrome, and how can we leverage them for greater impact?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
4.5
Middlefield
O společnosti
- G50 -
Cohen Syndrome Welcome to Cohen Syndrome Association Welcome to Cohen Syndrome Association Cohen Syndrome is a rare genetic disorder associated with mutations present at COH1 within chromosome 8 and is often undiagnosed for many years. Globally fewer than 1000 cases have been reported. The Cohen Syndrome Association was founded by parents to raise awareness of this disease with the goal of educating parents and professionals to assure earlier diagnosis and medical interventions. The Cohen Syndrome Association was founded in 2008 as a result of a family gathering in Middlefield Ohio thanks to a call for parent leadership from the DDC Clinic for Special Needs Children.
Nemoci nervů, svalů a kostí.
