Cystinosis Research Foundation - Together We Shine Bright
320067668
2003
Irvine, CA 92612 USA
cystinosisresearch.org
NataliesWish
CystinosisResearchFoundation
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Podobně sociální sítě (5116)
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Novinky
Since January, the Cystinosis Research Foundation has awarded $1,023,953 in research grant payments across 7 countries — fueling innovation and accelerating the path to better treatments and a cure. From Canada to Italy, and the U.S. to Switzerland, our global network of scientists is pushing boundaries every day in the fight against cystinosis. 🔬 Explore our full impact and areas of research focus: 👉 cystinosisresearch.org/impact #CRF #CystinosisResearch #RareDiseaseAwarreness #RareDiseaseResearch #HopeForACure #BetterTogether" #BackToSchoolTips #CystinosisCommunity #RareDiseaseParenting #CystinosisAwareness #ChronicIllnessSupport (fb)
New grade. New goals. Same unstoppable spirit. 💙 Heading back to school while managing cystinosis can feel overwhelming, but with a little planning, your student can step into the year with confidence. Here are 5 quick tips from the CRF community. Parents, caregivers, and students: What helps you feel prepared for the school year? Drop your advice below to help another family out. 💬📚 #BackToSchoolTips #CystinosisCommunity #RareDiseaseParenting #CystinosisAwareness #ChronicIllnessSupport (fb)
Poslední komentáře
Love the commitment and passion of the Cystinosis Research Foundation! Together we can make a difference and bring hope to those affected by this rare disease. 💖 #TogetherWeShineBrightdetail |
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So inspired by the stories shared by families impacted by cystinosis! Every step in research brings us closer to better treatments and a cure. Let's keep shining bright! 🌟 #CystinosisResearchdetail |
Poslední diskuze
1. How can patient stories be leveraged to raise awareness and drive funding for cystinosis research?Odpovědí: 3, Naposledy před 1 den detail |
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2. What strategies can the Cystinosis Research Foundation implement to engage more researchers in clinical trials focused on cystinosis?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
1
5
4.5
Irvine
O společnosti
- 949, H12, B05 -
Together We Shine Bright Who We Are Learn about our Mission Story and Research Advancements. Family Stories Each family has a unique story about how cystinosis has impacted their lives. For Researchers All the information for your researchers in one place. Natalies Wish Get the latest information on our biggest event of the year Natalies Wish.
Shromažďování finančních prostředků a/nebo distribuce finančních prostředků. Výzkumná instituce a/nebo analýza veřejné politiky