Smith-Magenis Syndrome Research Foundation
272906662
2010
Georgetown, CT 06829 USA
smsresearchfoundation.org
SmithMagenisResearchFoundation
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Podobně sociální sítě (3700)
Více Výzkum vrozených vad a genetických onemocnění
Novinky
Have you gotten your ‘I Love Someone with SMS’ decal? This exclusive design is still available so you can proudly spread SMS awareness while supporting innovative research! 🔗 Get your decal today at smsresearchfoundation.org/sms-awareness-decals/ #SMS #researchishope #SMSRF #SMSResearchFoundation #SmithMagenisSyndrome (fb)
Strength and tenderness – together, they create an unstoppable force. This community is driven by both as we fight for individuals with SMS. 💜 #ShareMyStrengthSaturday #SMSRF #smithmagenissyndrome #SMS #smsresearchfoundation (fb)
Poslední komentáře
So inspired by the work SMSRF is doing! Understanding Smith-Magenis Syndrome is crucial, and I love how you're pushing for innovative treatments. Keep it up! ❤️detail |
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Jennifer and Brian's story really touched my heart. Thank you for sharing the challenges and triumphs of raising Aaron. It helps us all understand and support families affected by SMS better! 🌟detail |
Poslední diskuze
What are some innovative treatment options currently being explored for Smith-Magenis Syndrome, and how can the community support these efforts?Odpovědí: 3, Naposledy před 1 den detail |
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How can we enhance awareness and understanding of Smith-Magenis Syndrome among healthcare professionals and the general public?Odpovědí: 3, Naposledy před 1 den detail |
V okolí
1
40
4.5
Georgetown
O společnosti
- H20, G80 -
Watch Now Aarons Story In the most loving and articulate way SMSRF board member Jennifer Sauer and her husband Brian open up about the challenges and complexities of raising their son Aaron with SmithMagenis Syndrome SMS. New Style Same Mission Introducing SMSRFs new visual identity designed to blend tradition with innovation. New SMS Research Findings Were excited to share the latest findings on the RAI1 gene pivotal in brain development explored through innovative studies in mice marmosets and human cells. Exciting News.
Výzkum vrozených vad a genetických onemocnění Konkrétně pojmenované nemoci